It seems like it must be SCT season. Lots of people on the list are going through them right now. Dan is home from his, after 17 days in the hospital. I wish I wasn’t so afraid of the process. In some ways, it would be good to get it over [...]
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My doctor says there’s no rush to worry about stem cell transplant right now. He thinks my MM is stable, and the IgA is slowly going down as a result of 5 months of the thal/dex combination and Zometa.
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Doc says IgA was 781, so it has resumed its downward course somewhat. Lots better than where it started, at 4625 at the end of January!
I’m hoping it’s the dexamethasone that’s largely responsible, because I’m afraid I might have to stop the thalidomide before it causes too much damage. I think I have [...]
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I had my monthly appointment with Dr. Orlowski at UNC yesterday. I expect to hear that my IgA is down again, based on the fact that my total protein is down again (6.5 g/dL). Albumin is also down. I’ll post the whole report once I have all the numbers back.
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Dear subscribers, one of the key issues that we are faced with at the
Cleveland Clinic is where do we stand from the issue of using vitamins.
Vitamins are critical for health and disease, however are tricky to use as
too much could be problematic and could result in significant side effects
that at some stage could be irreversible.
The [...]
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I’m trying to get more information to build a web site. Please have a look and contribute any information you have that you think could help others. http://www.mmsupport.net/
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Dan B. is undergoing his SCT now in Utah. To read about his experiences, you can go to http://www.mustard.com/myeloma.html.
The stem cell transplant is a very scary thing, if you ask me. It can provide some years of event free survival. The average is about 18 months. Some people get [...]
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Monthly dex pulse: On September 1st, I started monthly dex pulses. I used to take 40 mg once weekly. It wasn’t as bad as I remembered my initial dex pulses to be. When I first started taking it in April, it was 4 days on, then 4 days off (4 times). [...]
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According to a recent article in Alternative Medicine magazine (What’s behind the power of prayer?, Sept. 2003, pp.66-70, 106-108.), there’s scientific evidence to show that prayer has healing potential. The article offers 4 suggestions (p. 70):
1. Don’t let “I’m not religious” thoughts stop you.
[...]
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There are lots of drugs that produce a side effect of hiccups, and dex is one of them. My acupuncturist recommended that I try applying pressure to an area of my wrist to see if that would stop the hiccups I get when I’m on dex pulses. I did try it, and it [...]
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The dex makes me more vocal. These have always been rants, but I probably didn’t share them so freely.
People who speed in residential areas. What’s the hurry? Can we have more speed bumps?
Car dealers who lie or do anything to make a sale. Coming soon - a web site featuring my [...]
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I decided to start my dex a little after midnight, and slept pretty well. I woke up at 5 am and by 6 am took some xanax to get back to sleep. On Tuesday, Wednesday and Thursday I have acupuncture appointments. Acupuncture always helps me to relax. I see Lance Allen [...]
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