Dex is nothing short of agonizing sometimes. High blood sugar, sleeplessness and then the crash.
In a week and a half, I’ll have a blood test called IFE to see if it’s helping me. Dr. Orlowski thought maybe I could try DVd if this doesn’t help. DVd consists of Doxil, Vincristine [...]
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Since my last check a few weeks ago, my serum IgA is up almost 200 mg/dL. I guess that’ll teach me to stop my thalidomide. It’s at 1044 mg/dL now, and hasn’t been that high since before last May. I wanted to finish my masters degree before I do a transplant, so [...]
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Some things are different for me now. I guess that’s common when someone is diagnosed with a deadly disease. I really noticed it today when I was at UNC, waiting to see the doc. Someone’s baby was crying non-stop. His mom was having her labs drawn, and one of the nurses [...]
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I saw Dr. Orlowski at UNC today. My thalidomide has been stopped and I am now going to be taking 40 mg of dex once a week, followed by 20 mg the next day. We’re going to see how I do on that, and think about what will come next in the meantime. [...]
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I had a test done to determine my m-spike to see if I could enroll in the Revimid trial. It turned out my m-spike was 0.2 mg/dL. The study required an m-spike of 0.5 or higher. Mine was lower than it’s ever been in the history of my MM. I don’t qualify [...]
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I completely changed the MMSupport.net web site. Now it looks less cluttered and a little less primitive. I also added forums. Go check it out at http://www.mmsupport.net. There’s a search function too.
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I went to see the Titanic Exhibit today. It wasn’t quite what I expected. Not as many artifacts as I hoped. Still, it was interesting. As we entered the exhibit, each of us was handed a boarding pass with the name of an actual passenger on it. At the end [...]
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I’m having a blood test (SPEP) today to prequalify me for a clinical trial being conducted at Wake Forest (Revimid + dex vs placebo + dex). This ended up being a rush, because the drug company (Celgene) faxed them yesterday to tell them they were going to close down enrollment on the 17th (next [...]
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I had dex at the start of the month (March 1-4). This time I had PVCs, which was a new thing for me (as far as dexamethasone is concerned). I’ve had PVCs before, but not so much with dex, and not to this extent. PVCs are premature ventricular contractions. PVCs interrupt [...]
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TUESDAY, Feb. 24 (HealthDayNews) — A discovery by U.S. researchers may help lead to new ways to treat multiple myeloma, an incurable cancer of immune cells called plasma cells found in the blood and in bone marrow.
The study, in the February issue of Cancer Cell, identified a frequent and common abnormal cellular event that occurs [...]
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