I’m one of those people who sweats buckets when I’m taking dex. It’s amazing! I have to drink more than usual to stay hydrated. Does anyone else have this problem?
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I’m looking for people to help me administer www.mmsupport.net . I try to keep up, adding news articles when find them, and getting permission from people whose stories are inspiring and informative to publish them there. I get behind though! If you’re interested in helping out, please let me know. [...]
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I’m on 40 mg of dex every Friday and 20 mg every Saturday now. I’m tolerating it alright, but I can’t say I like it. I really admire the people who took their dex pulses for months and never missed a day of work. There are some days when I’m so tired [...]
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I have some of my lab results back. I have called a few times to have the nurse fax the entire report, but have had no response to my calls. Here’s what I got via email from my doctor:
The IgA was 952, IgG 354, and IgM 9
It appears that I am [...]
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I’m being sent to see an endocrinologist by Dr. O. LarryE., from the MM list has suggested all along that it’s a good idea to see one, epsecially when drugs like dex can mess with your blood sugar. Also, thalidomide & dex can cause amenorrhea, and that’ll disrupt hormones. [...]
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The claims people at AFLAC are being real jerks. I have the AFLAC Cancer policy, and for a year now, I have been struggling with them to pay my claims for dexamethasone as chemo. Their policy states that dex, when taken orally at 40mg, qualifies as chemo. However, they have been [...]
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I upgraded the blog software today!
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This is a web site we did for a local girl who has osteosarcoma. She is receiving hospice care at home now. Her weblog is updated by the family a few times a day. She would like for people to sign her guestbook.
Amber Ashworth
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After I started thalidomide in April, 2003, I noticed that I began to have significant trouble concentrating. I could no longer read a book, even. Before that, I read a lot — at least a few books a month. My short term memory also took a hit. I asked some other [...]
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I called in to get the results of my IFE and PE, and here they are:
April 7, 2004
IgG: 361 mg/dL
IgA: 904 mg/dL
IgM: 10 mg/dL
Total protein: 6.7 g/dL
It looks like I can be stable on dex alone. I last took thalidomide in early March. Initially upon stopping, there was an [...]
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I had blood drawn yesterday in Pinehurst. Since I had a dramatic increase in my IgA last time I had my monthly labs at UNC, my doctor wanted me to have another test in a few weeks. That was yesterday. We’ll see what the results are on Friday or Monday. They’re [...]
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I’m on my first day of dex at 40mg. Tomorrow I’ll take 20. I’m not sure that’s a good taper though. Last week I sufferd on Monday! I felt tired and my legs just don’t want to work. I ended up sleeping most of the day.
I’ll have a blood [...]
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