Posted on July 20th, 2004 by Beth
Sometimes I search on Ebay for charity auctions that will benefit MM research. If there’s something I want to get, and some of the money will go to fight MM, I’m lucky to have found it! Sometimes I will also just write to the seller to say thank you.
Today I did such a [...]
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Posted on July 16th, 2004 by Beth
Dexamethasone gives me horrible indigestion. During this time, ranitidine, alka seltzer and mylanta are my friends. This is a typical side effect of dex. Does anyone have suggestions for dealing with this?
I don’t expect to have to take steroids for a whole lot longer. I’m investigating stem cell [...]
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Posted on July 16th, 2004 by Beth
When I’m taking dexamethasone, my blood sugar climbs. My endocrinologist doesn’t feel it’s necessary to treat it, because it’s only mildly elevated, as long as I watch what I eat. I have to stay away from starches & sugar. Sometimes that’s not so easy! We had cake at work, and boy [...]
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Posted on July 14th, 2004 by Beth
There’s a clinical trial of a procedure that I would really like to be involved in.
Xcyte Therapies Web Site
http://clinicaltrials.gov/show/NCT00078065
The closest center is in South Carolina. It’s not terribly far — about a three hour drive.
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Posted on July 13th, 2004 by Beth
The last time my sister visited from Virginia, we did some searching on the web to find out if the University of Virginia has a BMT/SCT program. If they did, it would resolve one of my problems concerning the transplant process. Whether it’s done inpatient or outpatient, a caregiver is required. In [...]
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Posted on July 7th, 2004 by Beth
The MMRF’s “Score for a Cure” raised nearly $75,000 dollars for multiple myeloma research!
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Posted on July 7th, 2004 by Beth
When you visit any web site, certain things are logged. If your web hosting provider is worth anything, you’ll be able to see web statistics reports, which will put that logged information in a usable format for you. You’ll get some basic info about who comes (hostnames only - no real identity) to [...]
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Posted on July 7th, 2004 by Beth
These are the US states through which I’ve travelled (the red ones).
create your own personalized map of the USA
or write about it on the open travel guide
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Posted on July 6th, 2004 by Beth
The holiday weekend was relaxing. We grilled some chicken sausage and vegetables on the fourth. If you get the chance, try some Al Fresco chicken sausage — especially the teriyaki and ginger. They’re really good. I can’t speak for the other flavors. There’s one thing about this stuff that [...]
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Posted on July 3rd, 2004 by Beth
I was fairly disturbed when I got my mail today, and found campaign literature from a local man who is trying to keep his seat in the NC House. It’s not likely he will, because he’s in the dog house with the local Republican party. Anyway, back to the item that caused my [...]
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Posted on July 3rd, 2004 by Beth
The MMRF got a good plug on Fox today. Kathy Giusti was shown throwing out the ceremonial first pitch at the Mets vs Yankees game this afternoon. She did a good job! Ok, she threw like a girl, but it was just ceremonial. I don’t know how much money was raised, but [...]
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Posted on July 2nd, 2004 by Beth
I’m 99.99% sure I’m going to go ahead with a stem cell transplant. There just doesn’t seem to be any other chance at a prolonged and drug-free remission. Of course I know that the possibility of no remission at all exists. I believe I would at least get a near complete remission, [...]
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Posted on July 2nd, 2004 by Beth
Dr. Hussein, at the Cleveland Clinic, has published some information in something called Peer View in Focus. The article of interest is called “New Treatment Strategies for Multiple Myeloma.”
Something that really caught my eye about DVD was this:
The median time to progression was 23.1 months, and the median survival had not yet been reached [...]
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