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Relay for Life

The ACS Relay for Life is tomorrow. I’ll walk the survivor lap, and then probably go home. I’m wiped out from dex!

Thanks

I want to thank everyone for being there for me! Thanks to my family for checking up on me and helping out when I need it. I’m not one to ask for help, but when I do ask, they’re there. Thanks to LN for calling me every day and making sure I’m [...]

Started back on thal tonight

I started back on thalidomide tonight. It’s easier to call it thal. Surprisingly, Dr. Durie calls it thal too. Thalidomide is a mouthful. I took 40 mg of dex this morning and took 50 mg of thal tonight. I’ll take 50 mg of thal some other night this week [...]

Oops. Not skipping dex.

Well, I got my lab results back, and I’m not going to skip dex this week. My IgA is up from 1087 last month to 1417. Normal range is 40-390. So I don’t want to skip again.
My mom is in the hospital tonight. She had some chest pain and [...]

Skipping dex again

I’m skipping my dex dose again this week. The doc suggested that I not take steroids while I have shingles. It’s pretty much cleared up now. It’s nice not to have to take the dex, but I think my labs will show that my IgA has gone up. My total proteins [...]

Verizon Wireless

I signed up for Verizon wireless back in Februaury. There was a 15 day return period, during which the cancellation fee would be waived. It turned out there was no service in my area, so I had to return the phone and cancel the service. I did everything according to the book.
A [...]

Losses

Our online community has suffered some losses in recent months. Sadly, we’ve had to say goodbye to Barb Schultz and Barbara Jewell. Helen Volkema has also left us. I would also like to say goodbye to Max Stern and Bob Conn. All of these people have helped me in some way.

Change in treatment

I’ll be having a change in treatment soon, after having received advice from Dr. Durie. As soon as I can, I’ll start back on thalidomide — just 50 mg, twice a week. I’ll cut back on my dex dose, which is currently at 60 mg a week. I’m hoping to be able [...]

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