Jul 22, 2005 Posted by Beth on Jul 22, 2005 in General | 1 comment

Trial

I don’t think I’m going to enroll in that trial. I wrote to Dr. Durie, and he suggested three treatment options for me.

• Low dose Cytoxan with dex
• Revlimid
• Doxil and dex

You might know that Revlimid hasn’t been approved by the FDA for anyone to use yet, but I’ve been told there’s an extended access program that allows some patients to receive it. I’m going to call Celgene Monday to find out more. Also, I was told it should be commercially available in September/October.

Right now, I’m taking nothing. I dread seeing my next labs! Who knows though? Maybe not much will have happened.

Jul 16, 2005 Posted by Beth on Jul 16, 2005 in General | 0 comments

Fundraising again

In an effort to raise funds for the IMF, one of the things I’m doing is selling products from a company called Country Bunny. I’ve used them myself, and like them enough that when I need lotion I only buy theirs. Any money I receive on any of the sales from the web site is going straight to the IMF. You can order right from the web with your credit card by clicking below. I’ll report back how much I’ve raised from time to time. Thanks in advance!

If you’d rather just send money right to the IMF, go to their web site and click on “Helping the IMF.” (www.myeloma.org)

Jul 9, 2005 Posted by Beth on Jul 9, 2005 in General | 0 comments

My Labs

Sorry! I haven’t been very good about keeping up my labs. I’ll put relevant info into the main blog when I have it.

• 08 March, 2006 – Wake Forest Revlimid/Dex EAP Trial
• 22 February, 2006 – Wake Forest
• 8 February, 2006 – Wake Forest
• 5 October, 2005
• 27 September, 2005
• 20 September, 2005

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• CBC and everything – 30 January, 2003
• IFE and PE, SERUM – 30 January, 2003
• IFE and PE Urine – 1/30/2003
• Duke Labs – 19 February, 2003
• Bone Marrow Biopsy – 19 February, 2003
• DFCI Labs – 5 March, 2003
• Beta-2 Microglobulin and LDH – 18 March,
  2003
• IFE + PROTEIN ELECTRO, 24-HR UR -
  24 March, 2003
• CBC – 14 April, 2003
• CBC – 21 April, 2003
• CBC – 28 April, 2003
• IFE and PE, SERUM – 15 May, 2003
• CBC – 29 May, 2003
• UNC Labs – 11 June, 2003
• UNC Labs – 23 July, 2003
• UNC Labs – 20 August, 2003
• UNC Labs – 17 September, 2003
  (incomplete – sample lost!)
• CBC, IFE and PE, SERUM – 16 October,
  2003
• UNC Labs – 18 November, 2003
• UNC Labs – 31 December, 2003
• UNC Labs – 28 January, 2004
• UNC Labs – 25 February, 2004
• IFE and PE, SERUM – 11 March, 2004
• UNC Labs – 24 March, 2004
• IFE and PE, SERUM – 7 April, 2004
• UNC Labs – 21 April, 2004
• UNC Labs – 19 May, 2004
• UNC Labs – 23 June, 2004
• 21 July, 2004
• 25 August, 2004
• 22 September, 2004
• 27 October, 2004
• 17 November, 2004
• 22 December, 2004 – Endo
• 28 December, 2004
• 25 January, 2005
• 15 February, 2005
• 15 March, 2005
• 12 April, 2005
• 10 May, 2005
• 7 June, 2005
• 5 July, 2005

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Jul 6, 2005 Posted by Beth on Jul 6, 2005 in General | 0 comments

IgA Up Again

Seems like a broken record. My IgA is up again this month to 1705 mg/dL. The 40 mg of dex just doesn’t hold it back anymore. I suppose it’s helping some, but not enough. I’m thinking of doing the Velcade vs. Velcade + Doxil trial. I just can’t tolerate dex anymore. I thought I was going to give dex pulses one more shot, and I started last night. I simply feel rotten taking dex. I can’t do it again. I don’t care if I never have it again.

Jul 5, 2005 Posted by Beth on Jul 5, 2005 in General | 0 comments

Tooth

Last night, I felt like I had something stuck between my lower front teeth. What it was, was pieces of broken tooth! I have an appointment on Thursday to have it examined and have the jagged edges filed down. The thought of having a tooth filed is reminiscent of nails on a chalkboard.