This was posted on the ACOR MM list. I hope we’ll all take some action!
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For those of you who do not live in the US, I apologize. I also apologize for adding this to everyone’s email. I haven’t don’t this before so …
Apparently someone in the Center for Medicare Services (CMS) has come up [...]
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Here’s a picture of Buddy after a haircut. We’re about to go out for a walk, which is his favorite time of day. He always knows when it’s time, because I put on my shoes. I actually can’t stand wearing shoes since I got neuropathy from the thalidomide. No longer do [...]
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I had my neice and nephew (7 and 4) stay over last night. It was a fun time. Kids get up early! We made “cars” from cardboard boxes this morning and had breakfast in bed. They’ve gone home now, so it’s quiet here. For some reason, they decided to help [...]
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I have some latest lab reports posted. You can see them by clicking on “my Labs.”
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Read through this and let me know what you think. A lot of folks believe that there are cancer stem cells, and those need to be the target of research.
> Dear Friends,
> Dr. Matsui sent this wonderful reply to me late this evening.
> Describing the difficulties of getting people to [...]
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On February 6, 2006, President Bush released his proposed federal budget for Fiscal Year (FY) 2007 to Congress. Unfortunately, the President’s budget fails to meet even the basic public health needs for cancer patients and survivors as well as for other Americans with chronic disease and disability.
On the heels of approving the first cut to [...]
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I’ve had my Jetta TDI wagon for over a year now, and average between 35-38 mpg, average driving. I haven’t had any long trips, really, so I don’t know about straight highway driving. So far, it’s been a good car. The salesman said it could last me the rest of my life. [...]
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In college, we took the MBTI in a class. It was supposed to show us how it could be a tool we’d use in out HR work. Of course, I forgot all about it until I saw this http://www.personalitypathways.com/type_inventory.html
I completed the small survey and decided I am INFP. What are you?
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More from KM:
From the New York Times: A Cancer Drug Shows Promise, at a Price That Many Can’t Pay
“Doctors are excited about the prospect of Avastin, a drug already widely used for colon cancer, as a crucial new treatment for breast and lung cancer, too. But doctors are cringing at the price the maker, [...]
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My car was in for service at the VW dealer last week so, while it was there, I had them put in an adapter for my iPod. It’s pretty cool not to have to juggle CDs or look for radio stations anymore. I have music and audiobooks on my iPod which can keep [...]
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A fellow listmember on the ACOR MM list has been in touch with Celgene quite a bit, to get her husband on the new drug, Revlimid. Those of us in the trials get the drug at no cost to ourselves, but when it’s approved for use with MM, we’ll have to pay (one way [...]
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Source: http://myeloma.org/cgi-bin/ntlinktrack.cgi?http://myeloma.org/main.jsp?source=link&source_link_id=2072&type=article&tab_id=1&menu_id=0&id=1719
The International Myeloma Foundation
Advocacy Update: Support for Cancer Priorities Short-Changed in President’s Budget
By Greg Brozeit
2.14.06
Less Funding Proposed for Medical Research
President Bush’s recent state-of-the-union speech set the stage for an annual federal spending proposal that threatens to further erode our nation’s long-standing commitment to advance the pace of medical research and drug access. Despite [...]
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So far, the Rev/dex combo is working for me. It’s not without its problems though. My neuropathy has progressed considerably for the short time I’ve been on Revlimid. I started on January 11th, I think. It’s just a little over a month later, and my feet are more numb. I [...]
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US VP Dick Cheney, while hunting quail, shot a fellow hunter by accident over the weekend.
According to the AP, “The accident was not reported publicly by the vice president’s office for nearly 24 hours, and then only after it was reported by the Corpus Christi Caller-Times on its Web site Sunday.
McBride said the vice [...]
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The Moore County Relay For Life has been signed up with the Food Lion Shop & Share Program. If you go online and enter your MVP card #(it takes all 12 digits, you have to look close) they will share with us. It does not increase your bill. just go to http://www.foodlion.com and click [...]
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Can you believe I already have my tax stuff to the accountant for 2005? And it’s not even April! Or, for that matter, any extension deadline thereafter!
In the US, the tax burden is born by the middle class. If you have broadband, please take some time to watch this episode of PBS’s [...]
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I just got a call from my brother, who is working at the Daytona 500. He says Daytona Security just backed over the Budweiser dog and killed it! This isn’t something you’ll see on the news, but you heard it here first!
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Last night we worked on programming a router for DSL. I made a mistake that made us have to stay several hours longer than we really needed to. I hate when I do that! I was in a fog though, from being tired and on dex. It’s not really conducive to [...]
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Here’s what I just received by email:
“Got your phone and e-mail, just been very busy with patients this am. Your values are much better. M-spike in beta 2 region is 0.29 G/dl, Gamma region is 0.18 G/dl. Your IGA is 1132, IGG 310, and IGM 37
My IgA was 2245 mg/dL when I started. My [...]
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I started my second cycle of Rev/dex yesterday. So far, nothing bad! Just the dex sleeplessness and a bit of a headache. Normal dex stuff. Just 3 more months to go, and then I go to dex just 4 days a month and the Revlimid 21 days, like now. I [...]
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My teeth are very sensitive to cold again. I had this happen when I was on thal/dex, and now again that I’m on rev/dex. When I breathe through my mouth, the air passing over my teeth makes them hurt. Even room temperature water is too cold for me. I’ve been drinking [...]
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If you’re reading this from Moore County, North Carolina, why not consider volunteering for Relay for Life this year? For more information, please go to the web site.
If you’d simply like to make a deductible donation to the American Cancer Society, please go here.
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Would you like to have free web hosting and make a tax-deductible donation to the American Cancer Society? Until May 1, 2006, you can get six months’ free hosting with ConnectNC and help fight cancer. With your tax-deductible check made out to the American Cancer Society for $60 or more, you’ll get six [...]
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I’m on a week off from all my meds now, except the warfarin. I forgot how exhausting the 4 days on/4 days off of dex was. I can only describe it as being tired at a cellular level. Seriously. Every cell in my body is exhausted. My hands shake and [...]
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