This is just a note for anyone searching for potential side effects of Revlimid. Revlimid can cause nausea. I notice that I feel ill for a few days while I’m off steroids. The steroids actually help with the nausea. Dr. P. says that they give dexamethasone as an anti-nausea drug, so [...]
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I saw Dr. P last week and we talked about the low phosphorus problem I have. He considered it very low, and prescribed something called Neutra-Phos-K for me. I dropped it off at my pharmacy, and it STILL hasn’t been filled! They say it’s out of stock. He said the mineral [...]
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We had a successful reception Sunday at the National Golf Club. I was glad to meet A.W., another MM patient. You’d think this would be rare, since there are only about 50,000 of us in the United States. She has been in treatment since 1998, when she had her first stem cell [...]
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Anyone who has ever watched Six Feet Under knows about a “pre-need.” It’s about making arrangements for your funeral before you need to. Today I made the arrangements for my final disposition. I don’t need a funeral or anything like that. I’m an atheist, so a service isn’t necessary. I’ll [...]
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This question is for anyone in the Rev/dex EAP. Has anyone else had a sinking phosphorus level? Mine has gone from 3.3 mg/dL before the trial to 2.0 in Feb and 1.3 last month. They’re only checking it every other month, so I have no results from today. My calcium is normal, but I have [...]
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Well, my insurance won’t pay for a stem cell harvest unless it’s followed by a stem cell transplant, so I have a lot of thinking to do. If I were to pay for a harvest on my own, it would be about $10,000. That’s not something I can afford right now. I’m [...]
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