Comments on: Dr. P. http://myelomablog.com/2006/08/18/dr-p/ Ramblings and rants about my life, including my myeloma experiences. (Since 2003) Wed, 19 Nov 2008 18:49:42 +0000 http://wordpress.org/?v=2.7-beta3-9731 hourly 1 By: Lopo http://myelomablog.com/2006/08/18/dr-p/comment-page-1/#comment-1584 Lopo Thu, 24 Aug 2006 01:24:16 +0000 http://www.myelomablog.com/?p=532#comment-1584 It is more like you. Calm and confident. I love it best. Sorry for your mom. She must treat herself. It is a shame when someone in a "rich country" with access to the best treatments available let himself/herself gettting worst and worst just because of being affraid to accept the truth of the disease. tell her that in Africa and many other poor countries people die with no hope at all for even a paliative treatment. Sorry if I was so hursh. if not for her at least for those that can't have it :) Wishing the best for both. Lopo It is more like you. Calm and confident. I love it best.

Sorry for your mom. She must treat herself.

It is a shame when someone in a “rich country” with access to the best treatments available let himself/herself gettting worst and worst just because of being affraid to accept the truth of the disease. tell her that in Africa and many other poor countries people die with no hope at all for even a paliative treatment.

Sorry if I was so hursh. if not for her at least for those that can’t have it :)

Wishing the best for both.

Lopo

]]> By: Susan Schlueter http://myelomablog.com/2006/08/18/dr-p/comment-page-1/#comment-1579 Susan Schlueter Tue, 22 Aug 2006 22:48:57 +0000 http://www.myelomablog.com/?p=532#comment-1579 Hi Beth, i am in the same situation as you-i am trying to get my myeloma cells down enough to get a stem cell transplant. i have tried thalomid and velcade and couldn't tolerate either one. Thalomid made my legs hurt and velcade made me very sick as in sick to my stomach and very tierd. I am fixing to start taking revlimid. you said it made you feel sick --in what way? I am 47 and have had mm for 2 yrs--well acutally i has a solitary plasmacytoma and went into remisson for 5 yrs and then it turned into mm. Please let me know how revlimid makes you feel. thanks-- your story sounds so much like mine. sincerely, Susan Hi Beth,
i am in the same situation as you-i am trying to get my myeloma cells down enough to get a stem cell transplant. i have tried thalomid and velcade and couldn’t tolerate either one. Thalomid made my legs hurt and velcade made me very sick as in sick to my stomach and very tierd. I am fixing to start taking revlimid. you said it made you feel sick –in what way? I am 47 and have had mm for 2 yrs–well acutally i has a solitary plasmacytoma and went into remisson for 5 yrs and then it turned into mm. Please let me know how revlimid makes you feel. thanks– your story sounds so much like mine.
sincerely, Susan

]]> By: tk http://myelomablog.com/2006/08/18/dr-p/comment-page-1/#comment-1578 tk Sat, 19 Aug 2006 01:49:40 +0000 http://www.myelomablog.com/?p=532#comment-1578 I like your new theme! Sorry for your mom and for you. I like your new theme! Sorry for your mom and for you.

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