STC soon, most likely
I saw the doctor yesterday. The chemo I had in October did nothing for me, so I need to have some more and then on to a transplant. They don’t really do many bone marrow transplants anymore. Instead, they use stem cells. It will probably be February by the time I’m admitted for my transplant. In the mean time, I’m going to try to enjoy myself as much as possible, exercise a lot more (so I can be stronger for the transplant) and do some kind of chemo, which has yet to be determined. I failed a few treatments, so there’s one choice left, pretty much (Velcade in some combo). I’m in a situation where my cancer grows whenever I’m not constantly being treated for it. Time off is great and feels wonderful, but my disease likes it too. I’m not going to lie. I worry about my dog outliving me, and what will happen to him. How can I be sure he’ll be taken care of and loved? My cat, too.
I have an appointment on December 13 to see the transplant doctor.
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Thanks for the article
I wanted to say thanks to Matt Moriarty at the Pilot for helping to raise awareness about MM by writing an article about my campaign to raise funds for the International Myeloma Foundation (IMF). If you’re local, and would like to make a tax deductible donation, you can click on the link to the left or drop your check made out to the International Myeloma Foundation at our office at 285 West New York Avenue in Southern Pines. The IMF is rated 4 stars by charitynavigator.org, so you know your donation will be put to good use.
I wanted to make a correction or two to the article content. I’m not sure how I came to have myeloma. One of the possible causes of MM is exposure to too much radiation, but (as far as I know), I’ve never had anything more than xrays. I did work in an industry for a short time in which a lot of toxic chemicals are used.
My stem cells are frozen at Wake Forest University Baptist Medical Center in Winston-Salem. The procedure to have them reinfused is non-invasive. The cells are thawed and then returned to the patient intravenously.
Advances in cancer research are being accomplished almost daily. There are some who believe a cure for MM is within the realm of possibility in the not to distant future! The good news about much of this research is that it can be applied to other diseases. Velcade, a proteasome inhibitor approved for MM, is now being tested for use against lymphomas, leukemias, lung cancers and others.
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Next appointment
I have my next appointment to check up on things on Tuesday at UNC. I’m going back to see Dr. Orlowski. I originally switched to Wake Forest so I could get Revlimid before it was approved by the FDA. There are a variety of reasons why I decided to go back to UNC.
Anyway, I haven’t had any treatment since the chemo in October, and this is the longest I’ve gone without since 2003. It feels wonderful not to be taking drugs, and I’m trying not to think about what the myeloma might be doing. I’m just trying to enjoy the time off, especially from steroids (dexamethasone).
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Thanks, Michael McKean!
Michael McKean played on Jeopardy tonight for the IMF and another charity. He won! His total haul was $50,000, and I suppose the International Myeloma Foundation gets half! Yay! Thanks, Michael!
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Resist
I’m urging all readers to resist the urge to watch OJ Simpson on television or to buy his book. I’m not even going to say what US network will be airing the interview or when. You, the readers of this blog, are a smart and decent bunch, so this isn’t really directed at you. I’m hoping others will stumble upon the message and take heed. Why not go out for a pizza instead? It won’t be as unhealthy for you as inviting OJ back into your lives!
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Health Hazards
I just read this article and can identify.
By: Karen Springen, Newsweek
August 22, 2006, Newsweek on MSNBC.com
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Recent Labs
It’s been a while since I posted labs. For the most part, I haven’t gotten good lab reports since I was at UNC. The m-spike and IgA were measured 20 days after I had the cyclophsphamide. I was hoping for a good response to that, but maybe it was too early to test. I’ll have a repeat done in a few weeks to see if it’s gone down any.
| Test | Value | Reference Range |
| WBC | 6.6 x10^3/uL | 4.5 – 10.5 |
| LY | 1.2 | 1.2 – 3.4 |
| MO | 0.3 | 0.1 – 0.6 |
| GR | 5.0 | 1.4 – 6.5 |
| RBC | 3.73 x10^6/uL | 4.00 – 6.00 |
| Hgb | 10.7 g/dL | 11.0 – 18.0 |
| Hct | 33.3 % | 35.0 – 60.0 |
| MCV | 89.3 fL | 80.0 – 99.9 |
| MCH | 28.8 pg | 27.0 – 31.0 |
| MCHC | 32.2 g/dL | 33.0 – 37.0 |
| RDW | 19.7 % | 11.6 – 13.7 |
| Plt | 241 x10^3/uL | 150 – 450 |
| MPV | 6.5 fL | 7.8 – 11.0 |
| GFR Estimated | > 60 | > or = 60 |
| BUN/Creatinine ratio | 15 | 6 – 25 (calc) |
| Sodium | 148 | 135 – 146 mmol/L |
| Potassium | 4.6 | 3.5 – 5.3 mmol/L |
| Chlorine | 110 | 98 – 110 mmol/L |
| CO2 | 13 | 21 – 33 mmol/L |
| Calcium | 10 | 8.5 – 10.4 mg/dL |
| Protein, Total | 7.9 | 6.0 – 8.3 g/dL |
| Albumin | 4.5 | 3.5 – 4.9 g/dL |
| Globulin | 3.4 | 2.2 – 4.2 g/dL |
| Albumin/Globulin ratio | 1.3 | 0.8 – 2.0 (calc) |
| Bilirubin, total | 0.3 | 0.2 – 1.3 mg/dL |
| Alkaline phosphatase | 115 | 20 – 125 U/L |
| AST | 25 | 3 – 35 U/L |
| ALT | 24 | 3 – 40 U/L |
| Creatinine | 0.8 | 0.5 – 1.2 mg/dL |
| Free Kappa, serum | < 0.1 | 3.3 – 19.4 mg/L |
| Free Lambda, serum | 33.3 | 5.7 – 26.3 mg/L |
| IgA | 1563 | 81 – 463 mg/dL |
| 1st abnormal protein band | 1.0 g/dL | |
| 2nd abnormal protein band | 0.3 g/dL |
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Nervous
20 days after I had the Cytoxan, I had a quantitative serum IgA and SPEP done. I got the results back, finally. How can this be though? My IgA and m-spike are higher than they were before the chemo! I wrote to a well-known MM specialist, and here’s what he said:
One possibility is potential good news-that is that the Cytoxan actually destroyed and lysed myeloma cells, releasing IgA into your system and temporarily increasing the serum IgA level, which may now drop lower over the next few weeks.If that drop does not happen, then this does raise the question that transplant with high dose Melphalan may not work well. A modified protocol of some sort might be required.My suggestion is to follow closely off therapy for the time being.
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