Comments on: They look like mosquito bites

By: pvdubose

pvdubose — Tue, 27 Feb 2007 14:01:27 +0000

Beth, I recently found your blog and wanted to thank you for all of the great information. My 48 yr. old husband was diagnosed with stage 1 MM, Ig G over the Christmas break (hey, at least our 3 kids-age 10, 7yr old twins enjoyed the holiday!) and he
is on a course of Thal/Dex preceeding a possible stem cell transplant. We meet with the transplant surgeon, Dr. J. Moreb at Shands
Hospital, U. of Florida later today. Having a full-time job and 3 little ones to take care of, I haven’t had much time to do the research I would have liked to do. Your’s and Teresa’s blog have been an invaluable source of been-there-done-that information. I really appreciate your blog and wish you the best.

By: dmfreeman

dmfreeman — Mon, 19 Feb 2007 21:24:52 +0000

Beth thankyou for your site. I just found it!!! ha. reading some of your information has brought back many memories of my treatments. I was dx in june of 2004. I am now approaching the 3 year survival mark. I had my first transplant in Dec. 04 and second in Feb. 05. Still trying to get to remission. I am really thanksful to the Lord for The Myeloma Instititue in Little Rock. I too am on a clinical trial which involves thalomide and dex. so far no numbness
As far as what you are experienceing, i never had, but do let you physicians know about it immediatley. early treatment for us is important. don’t wait!!!!!

By: Beth

Beth — Mon, 19 Feb 2007 16:01:50 +0000

I called my doctor’s office and spoke to a nurse, who asked a doc about my situation. She said I should call them about it if they become any more numerous or become blister-like and the skin sloughs off. Eric also had this problem, and his was prevented by using IV benedryl and decadron during treatment. I emailed one of the research nurses at UNC to see if he had experience with this in the trials.

By: Jude

Jude — Mon, 19 Feb 2007 06:59:11 +0000

Beth,
This sounds like the “adverse event” that took me off the trial after my third cycle. They were only on my back. I might still have a photo around I could email. I had sent photos to my oncologist. He was worried about something called Stevens-Johnson syndrome.
Jude