I’ve been on Velcade & Doxil since January now, so it’s time for another update. There have been a few cycles during which I missed a dose because of a rash, shingles and a trip to Mayo.
I’ve tolerated Velcade & Doxil quite well, with the exception of the skin problems. I also have [...]
Filed under: Cancer, Life, Myeloma, Treatment | 1 Comment »
I posted a message on the mailing lists, looking for list members who live in the New York City area recently. The purpose of my inquiry was to pass on some information about a Focus Group that’s being arranged by Advanced Focus Research.
They are looking for MM patients and caregivers to attend. There are [...]
Filed under: Cancer, General, Life, Myeloma | No Comments »
I had my first day of tests at the Mayo Clinic. First, let me say that I’m awe struck by the facility itself. Everywhere I’ve been has been clean and well-run. There’s some real architectural beauty there as well. It’s like the Disneyland of healthcare. I mean it. It’s really nice! [...]
Filed under: Cancer, General, Life, Myeloma | 3 Comments »
I’m here in Rochester, MN, at the home of the Mayo Clinic. I arrived today in preparation for my appointments starting tomorrow morning at 8:05. I’m staying at the Marriott Springhill Suite, which is pretty nice. It’s nice being in the midwest. People are friendly and the drivers are extremely sane here.
I’ll post [...]
Filed under: Cancer, Life, Myeloma, Treatment | 3 Comments »
We’re trying to organize a get together this summer for members of the lists (and others) who live in or near NC, or who will be in NC this summer. The subject is wide open in terms of what, when and where. Anyone who would like to get together for a picnic or [...]
Filed under: Cancer, Food, Life, Myeloma | No Comments »
As part of “Koppel on Discovery,” an original Discovery Channel series, Living With Cancer premieres on Sunday, May 6th at 8PM ET/PT, simultaneously on Discovery Channel and Discovery Health. The two-hour documentary will be followed by a live town hall meeting led by Ted Koppel and a panel that includes Leroy Sievers, Elizabeth Edwards, Lance [...]
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MM (Multiple Myeloma)
MDS (Myelodysplastic Syndrome)
Patients & Caregivers
Clinical research study on a newly launched medical product. The purpose is to gain insight and gather opinions from patients and their caregivers that are diagnosed with MM or MDS. It is not necessary to be taking medications to participate. All information is completely confidential and used for research [...]
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I had blood drawn on April 26th and saw th report today. The last one was discouraging, but I was reminded not to panic until we saw a trend. This time, it’s down. The m-spike(s) are a tiny bit lower, too.
IgG: 350 mg/dL (range: 694-1618) Low — 375 on April 8
IgA: 876 mg/dL [...]
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