Archives

Be your own expert!

I was going through papers a few nights ago, when I discovered the handwritten notes that Dr. Richardson (Dana-Farber) had written while I sat in an exam room, there in Boston, in March of 2003.  That was 11 years ago.  I remember him telling me, “We hope to get you to your 50th birthday — …

Analysis of the immune system of multiple myeloma patients achieving long-term disease control

The article is called “Analysis of the immune system of multiple myeloma patients achieving long-term disease control by multidimensional flow cytometry.” It makes me think they mean long-term disease control was achieved by flow cytometry. That would be pretty awesome. They really mean that the analysis was done using MFC. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3533663/ Highlights (determined by me) …

Six years ago

Six years ago on this date, I had a stem cell transplant at Duke Medical Center. You can read what I wrote that day by clicking on the picture of my stem cells.  I didn’t document it very well.  I remember feeling just terrible when the stem cells were being injected into my line.  I …

June 2013 Lab Values

  This is the latest report I have.  I had blood drawn at the beginning of June. You can click on the small image of the report to see it full size. It indicates that I’m still stable.  From quarter to quarter, there are small changes, but nothing significant.  Sometimes the values go up and …

I just found this

It’s been a while since this was written, but I just became aware of this NPR story about Minnesota Don.  Don’s an amazing person, in every way. Targeted Cancer Drugs Keep Myeloma Patients Up And Running Don Wright got diagnosed with multiple myeloma at what turned out to be the right time. It was 10 …

Jay Bradner: Open-source cancer research

Hey! Run, do not walk, over to Margaret’s blog now and read about the work of Jay Bradner, who just may have figured out a way to stop myeloma dead in its tracks. After watching the video below, I started wishing I was a mouse!

Post about new “Blood” study from Margaret’s blog

I wanted to share this link with my readers, because it’s an important discussion about cure vs control and other aspects of myeloma treatment or management. http://margaret.healthblogs.org/2011/08/02/the-cure-versus-control-debate-a-new-blood-study/ Please read it and let me know what you think.  I’ve long thought I probably should have held off on treatment for as long as possible, and my …