http://myelomablog.com Ramblings and rants about my life, including my myeloma experiences. (Since 2003) Sat, 04 Jul 2009 16:10:30 +0000 http://backend.userland.com/rss092 en I copied a friend's recipe to spread around for people who're making ice cream for the 4th of July. Deb's House Concerts [1] This is the easiest recipe I found. It uses no eggs. It requires no cooking. It's super-easy! :) That's what I like for my "Cooking for the Motivationally Challenged" posts. :) And, that's what I like for myself, too! ;) Vanilla Ice Cream Recipe for a 1.5 Quart Ice Cream Maker Stir the following together and chill in the refrigerator for several hours, or overnight, before pouring into your ice cream maker. (The only variation I made is that my freezer wants only 4 cups of the recipe, and it expands to 6 cups while it freezes. I mixed the recipe below, then poured in 4 cups and saved the rest for the next batch.) No-Cook Homemade Ice Cream Southern Living [2] , Aug 2004 by Dosier, Susan [3] 1 cup sweetened condensed milk 1 cup evaporated milk 2 tablespoons brown sugar 2 tablespoons vanilla 2 cups whole milk That's all. That's it. It's that easy. Just be sure your freezer tub insert has been in the freezer long enough to freeze liquid on contact. And, chill your ingredients long enough to have it really cold before adding it to the freezer. And, after the ice cream is ready, put it into an airtight container and put it into your freezer (if you don't eat it all in one sitting!). :) Two Recipes of Homemade Vanilla Ice Cream I made two batches today. Actually, I mixed up the recipe last night, and made the first run this morning. Then, I thought the freezer can was still cold enough, so I mixed more and poured it in. (I did not follow the instructions to chill the ingredients before freezing or to add them to the freezer can straight from the freezer.) The second time it didn't work. So, at this point, the recipe ingredients are cooling in the refrigerator and the freezer can is in the freezer. Maybe I'll freeze the second batch tomorrow. Get a WordPress blog like this for your website! [4] [1] http://dhconcerts.wordpress.com [2] http://findarticles.com/p/articles/mi_qa3676/ [3] http://findarticles.com/p/search/?qa=Dosier,%20Susan [4] http://connectnc.com/wordpress-web-sites-we-help-you-learn/ http://myelomablog.com/2009/07/04/homemade-vanilla-ice-cream-recipe-no-eggs-no-cooking/ [caption id="attachment_1178" align="alignleft" width="270" caption="More kitteny goodness"][/caption] It's not all purrs and frolicking here.  Not for me, anyway. I knew it wouln't be easy taking care of 7 kittens and their 2 mothers, but I wasn't prepared for the smell!  In no time flat, the room in which I'm keeping the cats has taken on a pretty icky odor.  I'm off work tomorrow, so I'll spend some time cleaning up in there. I'm sure I'll discover some hidden surprises. The cats have begun to hang out right by the door, so when I open it to go in to feed, scoop or play, they try to escape. The 2 mothers are the first to slip past.  The kittens are easier to herd back into the room because they're still a little afraid of me. A few have gotten out, and presents a challenge.  They head straight for any piece of furniture or appliance they can hide behind. The heavier, the better. I have to plan a strategy for dealing with the escape attempts so nobody's lost in the house and there aren't any encounters with my cranky cat. My nephew has been dying to come and help me with them, but he's been sick and has had to stay home. I hope he'll feel better soon. If you know anyone in the area who could give any of these cats a great home, let me know. http://myelomablog.com/2009/07/03/more-kitteny-goodness/ [caption id="attachment_1170" align="alignleft" width="300" caption="Peeps"][/caption] The Animal Advocates of Moore County (AAMC) did a huge favor for me.  In February, a cat started hanging around my house. It was pretty cold, and I felt bad for her.  I started feeding her and tried to coax her into the house.  I finally tricked her into coming into the house on her own.  I called AAMC to see if they knew of anyone who was missing their cat.  She was extremely sweet and a beautiful cat.  Someone came to get her, and she was taken to a vet to be checked over.  She was such a great cat that I decided to keep her. About a month after her arrival, Peeps developed paralysis in her back legs. I took her to a few vets to see what could be done for her. They had me convinced that she'd never recover and we'd eventually have to have her euthanized. It was heartbreaking. I emailed AAMC to find out if anyone there had any experience with paralysis in a cat. Barb, from AAMC, actually came to my house and picked her up to take her to their vet!  She then kept her for a few weeks while Peeps underwent treatment with steroids (yuck). Peeps was able to walk when she got home!  So, I owe AAMC big time. Today I received a couple of mother cats and their litters of kittens.  I think there are 7 kittens.  I'd have to count to be sure. I'll keep them here until homes are found for them all. Fostering these cats is the least I can do to try to repay the folks at AAMC. [caption id="attachment_1173" align="alignnone" width="267" caption="Would you like to adopt a kitten?"][/caption] http://myelomablog.com/2009/06/30/invasion-of-the-kittens/ Stop by WordCamp RDU and see us! [1] This was the cake we were served during lunch.  Boy, was it good! We met lots of great people.  Matt Mullenweg is a charming and entertaining speaker. He made me fall in love with WordPress all over again. [1] http://myelomablog.com/wp-content/uploads/2009/06/l_1600_1200_2F45AFB5-0588-4319-A1AB-04D6D778B575.jpeg http://myelomablog.com/2009/06/13/wordcamprdu/ GENLAB Immunology: Final    06/01/2009 15:03 IMMUNOGLOBULIN PROFILE                                                              Reference IMMUNOGLOBULIN G *410 mg/dL [588-1573] TEST REPEATED TO CONFIRM NOTE: African-American reference ranges differ slightly from those listed. Please call the Immunology Lab at 684-6939 for race specific ranges. IMMUNOGLOBULIN A *432 mg/dL [46-287] TEST REPEATED TO CONFIRM IMMUNOGLOBULIN M *26 mg/dL [57-237] IMMUNOGLOBULIN E 30 IU/mL [4-269] http://myelomablog.com/2009/06/10/immunoglobulin-profile-multiple-myeloma-2009/ Lab Report: Final    06/01/2009 14:36 SERUM PROTEIN ELECTROPHORESIS                                                              Reference SPE INTERP COMPARED TO 2/10/09, NO SIGNIFICANT CHANGE IN PREVIOUSLY CHARACTERIZED (2) IGA-LAMBDA COMPONENTS FROM 0.21 TO 0.25 AND 0.14 TO 0.19 G/DL. "I have personally performed the interpretation". Dr. S. Pizzo, MD,PhD SPE TOTAL PROTEIN 6.8 g/dL [6.0-8.0] SPE ALBUMIN % 65.6 % SPE ALBUMIN 4.46 g/dL [3.97-5.34] SPE ALPHA 1 % 2.9 % SPE ALPHA 1 0.20 g/dL [0.11-0.32] SPE ALPHA 2 % 10.5 % SPE ALPHA 2 0.71 g/dL [0.40-0.88] SPE BETA % 11.3 % SPE BETA 0.77 g/dL [0.60-1.02] SPE GAMMA % 9.7 % SPE GAMMA 0.66 g/dL [0.53-1.37] SPE M-SPIKE 1 % 3.7 % SPE M-SPIKE 1 0.25 g/dL SPE M-SPIKE 2 % 2.8 % SPE M-SPIKE 2 0.19 g/dL http://myelomablog.com/2009/06/10/serum-protein-electrophoresis-mutliple-myeloma/ I had the unique opportunity of attending the Southern Pines Police Citizens Police Academy [1] these past 8 weeks.  We had our last session this evening. This cake was baked and skillfully decorated by one of the other attendees (Barbee). One of the topics for discussion last week was Community Oriented Policing. This is a philosophy defined by the US Department of Justice as promoting "organizational strategies, which support the systematic use of partnerships and problem-solving techniques, to proactively address the immediate conditions that give rise to public safety issues such as crime, social disorder, and fear of crime." Here's more information on Community Oriented Policing [2]. If you own a business or live in Southern Pines, sign up for the next Southern Pines Police Citizens Police Academy [3].  It's an amazing program.  Ask your local police department if they offer something similar. I'll catch up on more posts in the next few days.  Tomorrow's Friday! [1] http://myelomablog.com/2009/04/23/flashing-lights-southern-pines-police/ [2] http://www.cops.usdoj.gov/files/RIC/Publications/e030917193-CP-Defined.txt [3] http://www.southernpines.net/Police/CitizensPoliceAcademy.aspx http://myelomablog.com/2009/06/04/community-oriented-policing-southern-pines-police/ A blog reader sent this to me, and I wanted to pass it on. Hi Beth, I follow your blog and thought you might be interested to know about a new initiative launched by a coalition of patient advocacy organizations during the American Society of Clinical Oncology (ASCO).  Led by the International Myeloma Foundation (IMF), MDS Foundation and the Tackle Myeloma Foundation (TMF), they unveiled a patient “Statement of Principles” to address the inequalities in reimbursement of cancer therapies. Currently, Medicare and private insurance companies require higher deductibles and co-payments for oral drugs than for IV therapies and inpatient procedures.  However, private insurance is regulated at the state level and Oregon, Indiana and Iowa have laws requiring equal coverage with similar legislation pending in several additional states and federal legislation introduced in Congress. If you’re interested in learning more or signing the petition, you can check out the IMF [1] or MDSF [2] websites. Best, Allison If you go to the IMF's web site [3], you can read more about the Cancer Patient Statement of Principles.  This was taken from their web site. About the eight lethal cancers Eight forms of cancer, of which multiple myeloma is one, are projected to cause 49% of the 562,340* cancer deaths projected in 2009. For each of these forms of cancer, at least half of the patients diagnosed will die from their cancer within five years. Those cancers are: Type of cancer Deaths projected in 2009 New diagnoses projected in 2009 5-year survival rate Brain cancer 12,920 22,070 35% Pancreatic cancer 35,240 42,470 5% Esophageal cancer 14,350 16,470 16% Liver cancer 18,160 22,620 10% Lung cancer 159,390 219,440 15% Multiple myeloma 10,580 20,580 34% Ovarian cancer 14,600 21,550 45% Stomach cancer 10,620 21,130 24% *Source: Cancer Facts & Figures 2009, American Cancer Society, Atlanta. 2009 Click here to support the Cancer Patient Statement of Principles. [4] [1] http://myeloma.org/main.jsp?source=link&source_link_id=4008&type=article&tab_id=1&menu_id=0&id=2651 [2] http://www.mds-foundation.org [3] http://myeloma.org/main.jsp?source=link&source_link_id=4008&type=article&tab_id=1&menu_id=0&id=2651 [4] http://principles.myeloma.org/ http://myelomablog.com/2009/06/01/eight-lethal-cancers-myeloma/ Monica and I got to go to the Duke Lemur Center [1] in Durham, NC today for business.  It was great!  I took some pictures through the fences with my iPhone camera, and this was the best of them. I'm afraid I can't tell you what type of lemur this is, but I'll find out. Just before the meeting at the Lemur Center, I had a checkup at the Bone Marrow Transplant Clinic.  I'll have the results of my tests on Wednesday.   It's been almost two years since I had a skeletal survey, so I scheduled that for September.  The skeletal survey is a series of xrays of the long bones, skull and ribs and spine. I asked about a recent report I read that suggests that PET scans should be used for monitoring myeloma.  My doctor does those if there's activity such as an increasing m-spike and nothing shows up on xrays.  The PET can show plasmacytomas and other activity. I've been told that standard radiographs aren't much good at detecting bone damage until there's been a significant amount of destruction, so it's not a good early warning indicator. I'd like to have a PET scan just to see what's lurking.  I know they're expensive.  A few years ago I called around to get the costs at various places  because I wanted one, but was told by my insurance company that they weren't covered for myeloma. At the time, the cheapest PET scan I could find was about $3,000. Did you know you can do that?  If you're not insured, or your coverage isn't very good, call around to see who has the best deals on tests or procedures.  The costs can vary quite significantly between institutions.  Another money-saving tactic is to find out what's covered under what setting.  For example, my insurance has me pay 20% of services performed in hospitals.  That's why I have most of my chemo and all of my Zometa infused at a nearby doctor's office.  When I do that, it's just a $30 copay. Investigate all of your options! [1] http://lemur.duke.edu/ http://myelomablog.com/2009/06/01/duke-lemur-center-bone-marrow-transplant-clinic-today/ I was told about about a research project that's underway.  I have no affiliation with the group, so please do your due diligence.  If you participate, let us know how it went. We are currently looking for people that have suffered “oral mucositis” (mouth inflammation or sores) as a result of cancer treatment to participate in 45 min telephone interviews. The purpose of this research is to understand what does or does not work as treatment for this condition. The interviews can be scheduled this week and next and participants receive $100. Please respond with interest to contacts below. If this is not you, please refer or post for others that may have interest. Kind Regards Jan Mallery-Groom RN Clinical Project Manager +510-922-9710 recruitingresourcesllc.com http://myelomablog.com/2009/05/20/oral-mucositis-caused-by-your-myeloma-treatment/