Month: February 2004

Treatment possibility

I’ve been taking Thalomid for 10 months now, and have experienced some peripheral neuropathy. It’s to a point where I know I don’t want it to get any worse, so I’ve made a decision to stop it. I stayed on a low dose of just 50 mg/day for the entire time, hoping that I wouldn’t have this side effect (nerve damage). I’m seriously thinking about enrolling in a Revimid trial at Duke. The trial is CC-5013 Plus Dexamethasone Versus Dexamethasone Alone in Previously Treated Subjects with Multiple Myeloma. The way it appears, I could wind up only being treated with steroids and a placebo, but I’m willing to give that a try too. I just know I don’t want to have any more nerve damage done. I called the number at Duke and left a message to try to get more info.

I still have no word about my dog. I hope I’ll hear something soon!

Update

Argh. I’m still sick. I think I’m about at the end of this cold thing though. It’s to that coughing stage now.

I still haven’t found my dog. Ads have been running in the local paper and should be a mailer for the next few weeks too. I did get a few calls from people who spotted collies. One was in a neighborhood several miles away. I went to look and hang up flyers there. I did see a collie who lived in the neighborhood, so I guess that may have been the one someone saw. Tonight about 10 I got a call from someone who heard from a neighbor that he had seen a collie in their neighborhood an hour earlier. I called Rick and we went looking. After about an hour, we went home. I called her name, hoping it was my dog the man saw. I wish he had tried to detain the collie he saw.

Still sick

I’m still sick. Yesterday my doc called in an rx for Levaquin, an antibiotic, for me. We suspect I have a sinus infection. There were lots of scary interaction precautions with Coumadin, so I have an appointment on Friday to have my INR checked again. The antibiotic is for 5 days. I’m hoping that knocks the infection out and I can get to feeling better.

Today will be the first day the ads come out for my lost dog. I hope I get some results from this. My poor dog never did anything to deserve being lost like this, and it’s the saddest thing I have to deal with. Believe it or not, I have never prayed to be cured of my MM, but I sure have prayed to have my dog returned to me.

Dex rage

I had some pretty severe rage this week. In the aftermath of losing my dog, I took a lot of anger out on my family. I told my brother I wanted him to leave and not come back. He did leave. I don’t know if I can forgive him.

I have placed an ad in the local paper and a mailing they do. It will run once a week in the mailer and the newspaper for the month of February. I hope someone will see her picture and get in touch with me. She is my family, and I miss her very much.