Is anyone going to be at the Atlanta IMF Patient & Family Seminar in March? I’ll be there. I hope to see some of the people I’ve written to on the lists, and to see some of the people I met at the January, 2004 event. Unfortunately, I got sick in January, so I missed the last day! I so hate when that happens. I’m sure I picked up something from the flight to Ft Lauderdale. I ended up being sick for weeks. A bad cold, a GI bug and then another cold. Antibiotics finally got me back on my feet. This time, I’m driving. ATL is only a 6 hour drive, thank goodness. My brother lives in Atlanta, so it will be nice to see him. He’ll have dinner with us one night.
WordPress is the application I use for this blog, and there’s a new version out. I’m going to upgrade. I only hope it doesn’t hose anything. I’ll do a backup beforehand, so I can revert to the previous version if I need to. I’m hoping it’ll go off without a hitch.
I’m back on 2 days of dex a week now. The first day is 40 mg and the second is 20 mg. This seems to be the only way to keep the IgA down. At 40 a week, it was rising at the rate of about 200 mg/dL a month. Now, it’s on the decline after just a few weeks. See my labs for the latest results.
I don’t like to take 60 mg of dex. The side effects are worse than when I just take 40, of course. The last time I did this though, in August, 2004, my IgA was down in the 800s. When it got back up to over 1500, I decided it was time to take action. Now It’s down to 1183 mg/dL. We’ll see how it is next month, when I have my labs drawn on the 15th of March.
I called a friend who has cancer today. Sometimes months will pass between conversations. I’m afraid when I call, because I might hear bad news. She didn’t sound very good. I want to visit as soon as I can.
I’ve been very fortunate so far. My cancer hasn’t been very aggressive, and I’ve been able to skate by on what one doctor called minimal treatment. When I first found out I had MM and went for my very first visit to an oncologist, I was afraid. I asked him if I was going to get old, and he said, “I think so, but it isn’t going to be easy.” I felt a weird combination of hope and fear. I forgot to ask him what his definition of old is. Later, when I went to see Dr. Richardson at Dana-Farber, he said, “We hope to get you to your 50th birthday and beyond.” Another doctor said he thought I could be a long term survivor. Maybe a dozen years. Twelve years seems like a long time now that I’ve known more people who didn’t get that much. So, I feel lucky.
It’s my night to take dex. I dread Fridays.
I made a chart of my IGs from January, 2003 to January, 2005. When I look at it like this, it doesn’t look so bad to me. Looks pretty stable, doesn’t it?