Month: May 2005

Not much to report

I haven’t posted much lately. Mostly, that’s because there’s nothing to report. My IgA was going up, and I changed my treatment a little bit to see if I could stabilize again. My IgA is in the mid-1400s now (in April & May). I’m now taking 40 mg dex and 50 mg of thalidomide weekly. Yes, just once a week for each. I don’t tolerate thalidomide very well, so I’m using the lowest possible dose that will keep me stable. Before, when I took 50 mg, and then 50 mg every other day after I began to experience neuropathy, I was able to stay on it about 10 months. Along with dex, it really did help me. I wish I could take more, but I don’t want any more nerve damage. You never know how much you appreciate your feet until they go numb! The joy of new shoes is lost forever.

New Book by UNC Doctor

I read about a new book called The Last Well Person: How to Stay Well Despite the Health-care System when I was reading Seth Godin’s Liar’s Blog.

This is the link to the book’s amazom.com page. I have it on my wishlist.

Seth Godin’s new book, All Marketers Are Liars, is a quick and easy read. What’s best of all is that it’s fascinating. My nephew, who is a sophomore in high school, saw it in the back seat of my car and asked to read it. He had it done by the next day. I recommend that one too!

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