Month: June 2008

News about Stan Winston

The news has been filled with reports about the death of Stan Winston from myeloma the last few days. I didn’t know who he was, but I saw many of the films on which he worked. As a myeloma patient though, I was more interested in his disease than his work.  I wanted to know what treatments he had tried and how aggressive his cancer was. Where was he treated?  Did he have a stem cell transplant?  Did he have any remissions during that seven years?

None of my questions was answered. I think he may have been treated at the IMBCR, because I saw that listed as one of the preferred recipients of donations to be made in his memory.

What a great show!

I wanted to post this for other fans of the B’s. It was difficult to do more than get close-ups because of the people standing in front of us. It would have been nice if people would have remained seated and quiet for the show!

IgA is pretty stable after stem cell transplant

This is a chart of my IgA values since before the SCT last summer.  I stopped Velcade and Doxil in July, 2007 and the SCT took place at the end of August. This is quantitative serum IgA in mg/dL. The test on 10/11/2007 was the first one I had after stem cell transplant.

I’ve never once regretted having the SCT, and only wish I had done it earlier. In my case, nothing was keeping the mm under control for very long. The SCT has allowed me to be off treatment for 10 months now, which is a long time for me.

Duke allows me to look at my lab results online, and I’ve been waiting to see what my m-spikes are (I have two).  So far, they’ve stayed under 0.5 g/dL when added together.  That’s so much better than the 3.4 g/dL they were back in 2003.

IgA values in mg/dL

The reference range at Duke’s lab for IgA is 46 – 287.

The B-52’s

I’ve liked the B-52’s since I first heard them back in 1979. For some reason, it took me this long to go see them perform. I think everyone should see them! Buy their new CD, Funplex, and all the other ones, too!

I sneaked this quick video. It’s Cyndi Lauper introducing the B-52’s. Don’t tell anyone about this.