I don’t have a lot to blog about here because my myeloma has been stable since last fall. There’s not much there at all. If you don’t have myeloma, I have only a little bit more than you do.
These labs were done 12/08/2008
IFE SERUM (2) MONOCLONAL IgA-LAMBDAS DETECTED BY IFE. SPE M-SPIKE 1 0.17 g/dL SPE M-SPIKE 2 0.12 g/dL IG FREE LIGHT CHAINS SERUM Reference IG FREE LIGHT CHAIN KAPPA *0.16mg/dL [0.33-1.94] IG FREE LIGHT CHAIN LAMBDA 1.85mg/dL [0.57-2.63] IG FLC KAPPA/LAMBDA RATIO *0.09 [0.26-1.65] IMMUNOGLOBULIN PROFILE IMMUNOGLOBULIN G *374mg/dL [588-1573] TEST REPEATED TO CONFIRM IMMUNOGLOBULIN A *415mg/dL [46-287] TEST REPEATED TO CONFIRM IMMUNOGLOBULIN M *31mg/dL [57-237] TEST REPEATED TO CONFIRM IMMUNOGLOBULIN E 13 IU/mL [4-269]
I get a lot of strength from reading the comments on this blog. I have an appointment with my onc on Tuesday. My latest blood work has my numbers going up esp FLC (lambda) now 252 (5.7-26.3 range) and an abnormal protein band 1. Hoping and praying for the best.
Are you having any symptoms?
I just found out my mom has myeloma yesterday She’s known for 6 months & me & my sister JUST found out – she didn’t want to worry us until she knew if the drug she was taking as part of a clinical study worked, which it has, gratefully. It a new chemo drug she is on. Here is my question – has been any link to myeloma and the osteoporosis drugs like actonel? I know those drugs can cause ‘dead jaw’ but my mother was really healthy until she took actonel 3 years ago and has had problems ever since.
I haven’t heard of a link between that class of drugs (bisphosphonates) and MM. When you find out you have something like MM, it’s hard not to wonder what could have caused it. What drug is your mom taking for MM?
I’ll ask her and let you know. I’m so glad to see you all are doing ok! :) And thank you so much for your reply.
Bortezomib (velcade) is the chemo my mom is on that is working.
I found Velcade to be one of my easiest treatments. If she neds up getting hives after Velcade, some Benadryl and dex in the IV wll help.
Oh good! Thank you!!!! I will pass this on. She hasn’t lost much hair at all and the worst part she says is that she is nauseous all the time (but doesn’t want to take another drug for that so she is just “getting through it”) and is soooo tired. Knowing you and how you are doing helps me a lot and I know will help her a lot too. I was under the impression that this was a new clinical trial. Maybe it is new for Westchester, New York. We are so blessed to have this type of communication available. Thank you again, Beth. I am so happy to have had you come up in my Google search last week :)
How have things been going?
Great numbers. Tandem autoscts worked for me in 2003. I haven’t had an m-spike, have 1100 IGG, FLCA ratio of .95 for over 4 years. No treatment for over 1 1/2 years after 3 years of very low dose maintenance of Thal, then Rev. Oncologist and I felt we had flogged mm enough.
Let’s keep it up!
Palm Desert, Ca
What a great report. Congrats!
Awesome. I am happy for you! A friend’s mother always had a standard reply to “What’s new with you?” She’d say, “Nothing, thank God!” I guess I understand that much better now. ;D
Looking good, Beth!
Keep it up!
That’s great news! Hope your number continue to be unremarkable.
Beth, those are great numbers! I think they are especially good because there has been little movement. I hope my post-transplant myeloma is equally boring. My numbers are similar, though my Freelite test shows a ratio of 2.07. So, I am slightly above normal. I asked again at a myeloma support group about etifoxine and neuropathy. The speaker, an oncologist, was unaware of the abstract. Sigh…