Thanks to a recommendation from a friend, I got a prescription for Prevacid (30 mg daily) and it has really put a huge dent in my dex indigestion! I haven’t suffered at all today, thank goodness.
Sometimes I search on Ebay for charity auctions that will benefit MM research. If there’s something I want to get, and some of the money will go to fight MM, I’m lucky to have found it! Sometimes I will also just write to the seller to say thank you.
Today I did such a search and found this item. Diana Krall tickets. You know what bothers me about this? The seller mentions that Diana supports the MMRF. The seller used the words in the auction text for what reason? To attract potential buyers. It makes me angry that someone would overinflate the price of some concert tickets and add these words: “Diana Krall is a supporter of the Leukemia/Bone Marrow Transplantation Program/Vancouver Hospital The Multiple Myeloma Research Foundation.”
Does it seem wrong to you?
Dexamethasone gives me horrible indigestion. During this time, ranitidine, alka seltzer and mylanta are my friends. This is a typical side effect of dex. Does anyone have suggestions for dealing with this?
I don’t expect to have to take steroids for a whole lot longer. I’m investigating stem cell transplant as my next treatment. After I had a SCT, I wouldn’t be on any kind of maintenance. What’s the point of going through all that just to take drugs again? I know that some folks hope to extend their remissions, but for me it’s a QOL issue.
When I’m taking dexamethasone, my blood sugar climbs. My endocrinologist doesn’t feel it’s necessary to treat it, because it’s only mildly elevated, as long as I watch what I eat. I have to stay away from starches & sugar. Sometimes that’s not so easy! We had cake at work, and boy did that do a number on my blood glucose.
What I do to lower my blood sugar is exercise. I walk a few miles, and my BG will go down as much as 50 mg/dL. If you’re able, get out and take a brisk walk. It will help. Tonight the first walk early in the evening lowered my BG from 230 to 197. The second walk brought it down to 147. It’s late, and I’m too tired to go again. :)
There’s a clinical trial of a procedure that I would really like to be involved in.
Xcyte Therapies Web Site
The closest center is in South Carolina. It’s not terribly far — about a three hour drive.
When you visit any web site, certain things are logged. If your web hosting provider is worth anything, you’ll be able to see web statistics reports, which will put that logged information in a usable format for you. You’ll get some basic info about who comes (hostnames only – no real identity) to your site and how they got there (referrer). When someone types in some search terms in Google, for example, those are logged too. Over the months, I’ve seen a lot of the same search terms come up over and over. I’ve searched for some of the same things myself, and haven’t always found an answer.
I see search strings like: myeloma blog, side effects of thalidomide and others. Something that comes up every now and then is, “what is it like to die from myeloma?” I don’t have the answer to that. I’ve seen it asked on the ACOR MM list too, and never saw a reply. Myeloma isn’t the same for any two people during the course of the disease, so I imagine it doesn’t end any two peoples’ lives in quite the same way either. I have read that often something like pneumonia will be how a myeloma death will occur. I used to wonder about that a lot after I was first diagnosed. I no longer do.
The holiday weekend was relaxing. We grilled some chicken sausage and vegetables on the fourth. If you get the chance, try some Al Fresco chicken sausage — especially the teriyaki and ginger. They’re really good. I can’t speak for the other flavors. There’s one thing about this stuff that makes me cringe, and that’s the casing. Why does it have to be made of pork intestines? Even so, I loved this sausage. I just don’t understand how I can overlook the intestines. :) It’s just that good.