Author: Beth

Amber

A while back I posted a URL for a site we created and hosted for a young lady named Amber, who was suffering from osteosarcoma. Amber succumbed to her disease a few days ago, after a long struggle and much suffering. Her family asked that donations be made to the Make-A-Wish Foundation in her name.

Comments Moderation

Now that there are blog spammers, all comments submitted will have to be approved by me before they’ll appear. I’m pretty quick at approving during waking hours.

Current events

I’ve been very disturbed by our treatment of the Iraqi POWs. I grew up in a time where there were lots of WWII vets in the community and the Viet Nam war was dragging on, and there were reminders about how terrible war can be. We had men who had lost limbs in Europe or the Pacific, and girls who were a little older than I was wore POW bracelets to support the soldiers who were captured in Viet Nam. I have always been very proud of anyone who served in the military. It’s not something I could have done, and I admired their courage and commitment.

I know that the events at the Iraqi prison were carried out by a few, but I am ashamed none-the-less. Those people have tainted all of us, I believe. I think they should be harshly dealt with. We’re Americans, and we have to be better than the others.

I’m not comforted by the interviews I saw on TV with other soldiers who seemed not to care that this happened. Being that we’re near Fort Bragg, where one of the soldiers involved (the woman in the pictures) is being detained, there’s been a lot of local coverage. Some of the Ft. Bragg soldiers who were interviewed said that they don’t see anything wrong with what happened!

A Korean War POW and a WWII POW were interviewed to get their thoughts on the matter. The Korean War vet was tortured himself. Both men were heartbroken that this would happen. Are Americans different now? More cruel? More violent?

Encouraging words

This was from someone on the list. I just extracted this small part:

“I am 40 myself and have been told by a lot of folks that if I can make it 5 years and stay reasonably healthy, the MM world will look far different than today, just as today it is far different than 1999.”

I have had this notion myself. I believe it!

Obedience training

Buddy & I went to obedience training yesterday. He did quite well! I’m the one who forgets what to do. There are only 2 other dogs in the class. They’re his main distraction. Eventually, he’ll learn to ignore them. We see other dogs when we walk, and he sometimes ends up in a tangle with them, so that’s a very important thing to work on. It scares me!

Cursed blood sugar

I tried taking my dex at night to see if it would help me to be asleep when the jitters & sweats started. That part was ok. But when I woke up (too early) and tested my blood glucose, it was 199 mg/dL! I think I have to take it during the day when I’m active. That will all be resolved on in a few weeks when I see the Endo. It’s possible I may need to take some kind of diabetes med a few days a week. Others have had to do that while they’re taking dex.

THREE SISTERS: SEARCHING FOR A CURE

This isn’t about MM, but ALS. Searching for a Cure tells how Jenifer Estess and her sisters Valerie and Meredith fought the disease by creating Project A.L.S., a nonprofit organization that has raised $18 million and has catalyzed ALS research by bringing together a dream team of scientists from Columbia University, Johns Hopkins University, Harvard University and the Salk Institute to find a treatment and cure for the disease.

http://www.hbo.com/docs/programs/3sisters/synopsis.html

From the Cleveland Clinic Multiple Myeloma News Letter

The clinical and the research group at The Cleveland Clinic Myeloma Research Center would like to thank all of you for the comments and the great responses we have been receiving.

In this issue I will pass to you the link to some exciting regimen for a trial that is currently closed and the results have presented at the American Society of Hematology. The responses achieved in this study were comparable to what is seen with single bone marrow transplantation. Follow this link for more information.

http://www.clevelandclinic.org/myeloma/DVd-T Results.htm

Also, we would like to invite all of those who can make it to the kick off event that will be held on May 12, 2004 to initiate our efforts for the MMRF-Cleveland Clinic Myeloma run on June 13, 2004. Further information will be passed in the next few days as to the location and times.

Thanks again for your support.

You have a great rest of the spring!

Mohamad Hussein, M.D.