Category: Life

Life

“Six Months” features MM Patient

I just ran across a program on the Biography Channel called "Six Months."

The program is about people living with deadly diseases, one being multiple myeloma. If you’re on the US west coast or central or mountain time, you can still catch tonight’s showing.

There are two more upcoming showings:

Thursday, December 6 3:00am
Saturday, December 15 1:00pm

From the Biography Channel web site:
Six Months: This emotional and heart-wrenching special features the stories of real people who are making the journey through the final months of their lives. After Eric and Janice both receive a terminal diagnosis, they quickly begin to see things from a unique perspective, and they challenge others to examine their own lives for the things that are truly important.

Janice has MM. Eric has a form of sarcoma.

I hope you can see this program. I haven’t found that it’s available on DVD, but if I do, I’ll post details.

This is Janice Chaffee’s web site: http://www.janicechaffee.com/.   MM took her life in early 2007. You may remember seeing the notice if you subscribe to Google Alerts.

Be prepared to cry.

Take care, everyone.
Beth

Some lab values

I got the results of the tests done Monday at Duke. The full report was faxed to my office, and I haven’t seen it yet, but here’s what I have so far.

M-Spikes (I have two m-spikes)

Last month: 0.19 and 0.12 g/dL (Total is 0.31 g/dL)
This month: 0.16 and 0.22 g/dL (Total is 0.38 g/dL)

Immunoglobulin Profile

Last month: IgA 374 mg/dL Reference: 46-287
This month: IgA 465 mg/dL Reference: 46-287 (up 91)
Last month: IgG 709 mg/dL Reference: 588-1573
This month: IgG 603 mg/dL Reference: 588-1573 (down 106)

I have July and August here. Needless to say, I was fervently hoping for a drop in the IgA and an increase in the IgG.  The one good thing is that the IgG is still in the normal range, where it has never been since I learned I had MM.  It was usually below 300 mg/dL.

Can someone give me a good explanation about why I have two m-spikes? I’ve asked doctors about a zillion times, and I have either forgotten what they told me or didn’t understand it well enough to even remember.

Hair Update

I thought I’d give a visual progress report of my hair growth.  Here’s a picture I took today.  You can compare it to one I took on October 13, 2007.

Hair growing back after stem cell transplant

Kind of weird, huh?  And, not too attractive. My hair started to fall out in September, after I had high dose chemo (melphalan) on August 28th. Some spots still look bald, even though there’s a covering of very fine, nearly invisible hair.

I had a follow up appointment at Duke today.  I won’t have any results until Wednesday afternoon.  Not anything important, anyway.  I didn’t even bother getting a copy of my CBCs. Dr. Long just told me they were completely normal. Throughout my entire MM experience, my CBC’s have hardly ever been anything but normal.

The IMF and cast of Everybody Loves Raymond honor Peter Boyle

This is from Access Hollywood. Way to go, IMF!

Hollywood Radar: November 12, 2007
All Access
The cast of “Everybody Loves Raymond” honored the late Peter Boyle at the International Myeloma Foundation Event to benefit the Peter Boyle Memorial Fund. And, Jerry Seinfeld’s “Bee Movie,” which open in second place last week, moved up to number on with $26 million.

To see a short video, click here.

To make a contribution to the International Myeloma Foundation, click here.

Great weather

It was about 70 degrees here today, which was fabulous. We walked to a nearby restaurant for lunch and didn’t need our coats.

I tried out a new chair at work. I need something on which I can put up my feet. When they’re not up, I have an increase in that neuropathic pain. I’m going to pile some pillows up on the foot rest tomorrow to see if that helps. Otto suggested some T.E.D. socks, so I’m going to look for them next time I’m out someplace.

Long car ride

On Sunday I drove a friend to Rocky Mount, NC to visit some friends. It was 2 hours each way, with a few hours in between. By the time I got home, my feet felt as though they were in flames and someone was beating on the soles with a hammer.  From the knees down felt numb.  This happens to me when I have to sit for too long.  This is a result of treatment with thalidomide and Velcade.  Luckily, the pain and discomfort goes away by the next morning and I’m left with the numbness in just my feet.

What is it that makes the PN so much worse while sitting?

New hat

This is a new hat brought to me from New Mexico by Sharon. Isn’t it beautiful?

Here in NC, we’re under voluntary water restrictions due to extreme drought conditions. Some of the people in my neighborhood are ignoring it though. I’ve noticed a few people washing cars at dusk, so as not to attract attention to themselves. I think we should have mandatory restrictions statewide. Some cities are fining people for car washing and watering lawns.

My hate from New Mexico