Category: Myeloma Treatment

Myeloma Treatment

June 2013 Lab Values

Beth Blood Test from June 2013
Blood Test Results from June 2013

 

This is the latest report I have.  I had blood drawn at the beginning of June. You can click on the small image of the report to see it full size.

It indicates that I’m still stable.  From quarter to quarter, there are small changes, but nothing significant.  Sometimes the values go up and sometimes down.  There’s nothing exciting to report this time.

I’m still taking 8 grams of curcumin each day, along with cinnamon, coconut oil, flax oil and krill oil.

I see the oncologist every three months, and have Zometa every three months, too. My bone density is normal.

There’s really not much to talk about, where the myeloma is concerned.  It continues to lurk, without doing anything (that I’m aware of).  It behaves like SMM.

I’ve not had any maintenance therapy since the SCT, which took place at the end of August in 2007.

I wish everyone could have such boring reports!

Here’s the PDF version > PDF Version

I just found this

It’s been a while since this was written, but I just became aware of this NPR story about Minnesota Don.  Don’s an amazing person, in every way.

Targeted Cancer Drugs Keep Myeloma Patients Up And Running

Don Wright got diagnosed with multiple myeloma at what turned out to be the right time. It was 10 years ago, when he was 62.

That was at the beginning of a revolution in treating this once-fearsome , which strikes around every year. The malignancy can literally eat holes in victims’ bones, which can snap from the simple act of bending over to pick up a package.

Read More Here

I have never met Don in person, but I have spoken to him on the phone, and he even  did me a super big favor once.  A couple of times.  He’s been great about sharing his experiences with the myeloma treatments he’s undergone.  He’s been on pomalyst lately, which is a new-ish drug for mm patients.

You can listen to the story at the article’s home > http://www.npr.org/blogs/health/2013/02/18/172098789/targeted-cancer-drugs-keep-myeloma-patients-up-and-running

You can read Don’s blog here > http://myelomahope.blogspot.com/

Post about new “Blood” study from Margaret’s blog

I wanted to share this link with my readers, because it’s an important discussion about cure vs control and other aspects of myeloma treatment or management.

http://margaret.healthblogs.org/2011/08/02/the-cure-versus-control-debate-a-new-blood-study/

Please read it and let me know what you think.  I’ve long thought I probably should have held off on treatment for as long as possible, and my post-SCT strategy is to stay treatment free for as long as possible. I expect to withhold treatment until symptoms affect QOL.

Ferarro was concerned that only some can afford cancer treatment

This was done in 2007, when Ms. Ferarro was in remission. She expressed concern in this video about the fact that drugs that allowed her to stay alive were not available for all. This continues to be the case. Unless you have a lot of money or good insurance, you may not be able to get the treatment many of us count on to keep us among the living. In this video, she’s getting Velcade and talks about research and funding.

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Voluntary Limited VELCADE Recall

This is from the Millennium Pharmaceuticals web site. Just a snippet here, with the URL so you can read more. Chances are good you’ve already heard about this if you’re on Velcade.

As a precautionary measure, Millennium is voluntarily recalling a limited number of lots of VELCADE® (bortezomib) for Injection 3.5mg/vial due to the possibility that small white polyester particles may be observed upon reconstitution of VELCADE drug product.

Millennium is undertaking this recall in consideration of the potential for safety issues if the affected product is administered to patients including local injection site reactions, inflammatory responses and thromboembolic events.

The VELCADE Package Insert (Section 2.7) and Investigator Brochure have specific guidelines recommending visual inspection for particulate matter or discoloration prior to administration. Do not use the reconstituted product if you observe particulate matter or discoloration.

The U.S. Food and Drug Administration (FDA) has been informed of this voluntary limited recall.

This action is limited to the VELCADE lots listed below, produced by one of our manufacturers before certain process improvements were implemented.

http://www.mlnm.com/velcade_recall.asp

I was in a trial once, and got a letter about there being some particles found in my drug, too. I wonder how polyester and other things get into our drugs?