I got some really good answers to a question I posted on the ACOR mailing list. They’re here, in case you missed them. My question was:
I have been wondering about complete response to a treatment, whether it be SCT or use of chemo, and the need for continued use of drugs or other treatment afterwards. I’ve noticed that some people have just Zometa or Aredia, while others will stay on a steroid or some other drugs. Once you have total remission, is it necessary to stay on drugs? My goal is to not have to take anything for as long as possible. Will that be a possibility for me?