Fundraising

If you haven’t yet donated to the MMRF (Multiple Myeloma Research Foundation), you can go online and make your contribution.

MMRF – Donate Online
Fill out the form and be sure to choose “ConnectNC” as the Gift Designation.

Or visit th IMF and make a donation HERE.

Thank you for your help!

Water

My well water doesn’t meet state drinking water standards because of low pH. I’m having it corrected soon. Culligan will be here Monday to install a treatment system, including a tank to correct the pH, a conditioner and a reverse osmosis filter. When it’s all done, I’ll be able to drink the water at the kitchen sink and do away with the bottled water I’ve been having delivered for the last several years.

Friends and family

I want my friends and family to know how grateful I am for their support. Thanks to E for calling several times a day, and to M for checking in at least once a week. Thank you G for taking the time to stay in touch even though your mom passed away. Thanks to D for coming to see me and calling when you can. Thanks S for the email and coming to see me in a few weeks.

Thanks to all my family for tolerating my moods and helping with the things I’m not supposed to do myself anymore. Thanks for driving me to appointments and thanks for getting things for me when I’m sick.

It’s only been 5 months since I was diagnosed, but you have all been there for me before and haven’t abandoned me. I appreciate all that you do, and am forever in your debt.

Dex

I took my dex last night and fell asleep without the help of any other drugs. I also didn’t have any trouble staying asleep. This morning I have that speedy feeling I usually get with dexamethasone: rapid heart rate, shakiness, etc. I hope I can remain calm today. One day last week I really lost control and had an explosion of rage.

I have an appointment at the Coumadin clinic today. I take mine in the the mornings so it won’t interfere with my cancer drugs, which I take at night.

No appointments today

Red Tea
I have no appointments today, and am over the effects of my weekly dex pulse, so I am going to enjoy the day. There are things I can do at the office, errands I can run and things to do around the house. My brother has been here fixing things and taking care of the yard, so there’s not a lot to do here. I’ll just start the day with some red tea.

When you have a disease that has the potential to kill you much sooner than you expected to go, you start thinking about things differently. You also think about things that never occurred to you before at all. I find myself being envious of older people. I wonder if they know how lucky they are to be 60 or 70 years old? Possibly not. I never appreciated my own good fortune. I took it for granted. The funny thing is, I now consider myself lucky! I even said that to my doctor yesterday. I am lucky that my MM was found before I became very sick or had broken bones. I’m lucky that I have a supportive family and staff at work. There are a lot of things to be grateful for.

Zometa

Dr. Orlowski cleared me to use Zometa again, so I had a 30 minute infusion this morning. I hate having a needle in my hand, but that seems to be their favorite place for it. It makes it difficult to do anything. I normally take my Palm Pilot and play solitaire. Today I played left-handed.

This afternoon I need to go to the coumadin clinic and then to see my primary care physician for a check up. He just likes to make sure nothing falls through the cracks. He’s a good guy. I have him to thank for finally finding out what was wrong with me.

Thanks

I appreciate you for doing this website. It is a marvel. Thanks. Many myelomics need a place just like this…non intimidating, friendly, hopeful. Please continue to keep us posted about your activities, life and treatment. We are al in this together! (Still jealous “cause you have the best doctor!) B

Coumadin

Dr. Orlowski put me on coumadin as a preventative for deep vein thrombosis. One of the requirements of being on the drug is weekly testing to make sure the blood is at the desired International Normalized Ratio, or INR. An INR of 2.5 to 3.0 indicates the appropriate dosage. I’ve been enrolled in a Coumadin Clinic to keep tabs on my INR. My first blood draw will be tomorrow. For a while, I’ll report to the Coumadin Clinic at least weekly to have my INR monitored. I’m used to having lots of blood drawn now. I’d estimate that I’ve had at least 30 venipunctures since January!