I just got off the phone with the nurse at my oncologist’s office and got some good lab results. She read off everything, but I didn’t have a pen and paper. I just remember the immunoglobulins, so here goes:
IgA 964 mg/dL
I think she said my 2 m-spikes added up to something like 0.4 g/dL. I’ll be there Tuesday to start another cycle of Velcade and Doxil, so I’ll get a copy of the report then. Last month, my IgA was in the 1300s. Before I started, it was in th 2200s. 964 is good! Maybe another cycle will get me into the normal range, which is a place I haven’t been since my diagnosis. A remission would be nice.
My mom (64) has MM – prior to diagnosis she said it felt like shards of glass shifting within her torso with every movement. She had multpile fractures in ribs, sternum and vertebrae.
With many extreme interventions her fractures have healed or been stabalized. It has been a long process. She will undergo first SCT next month in pursuit of remission.
Her fabulous encologist is also from India….
I am from India. Happened to find ur site when i googled about MM. My dad was diagnosed with MM a yr back. He’s 64. Ever since I’ve been trying to read a lot abt it. One of the symptoms he had that I haven’t read anywhere else is cramps. He would get cramps all over his torso with the slightest movement. He was even scared to breathe. No doc could even think of MM, until it got worse. Since you have a wide readership of people with similar experiences, I thought you could talk about this unique symptom. Maybe someone else suffering from it would recognise and get themselves tested. I plan to read every post of yours. It’s very informative. Thank you and I pray you soon achieve remission.
Great numbers. It is my understanding that IgA under 1000 IS remission, so I’ll jump in and say CONGRATULATIONS!
Hope you get your remission Beth
i just saw this, those are good #s. when do you do the sct?